{"id":2,"date":"2016-05-17T15:14:08","date_gmt":"2016-05-17T15:14:08","guid":{"rendered":"https:\/\/www.vdh.virginia.gov\/sickle-cell-programs\/?page_id=2"},"modified":"2026-04-02T18:11:16","modified_gmt":"2026-04-02T18:11:16","slug":"sample-page","status":"publish","type":"page","link":"https:\/\/www.vdh.virginia.gov\/sickle-cell-programs\/","title":{"rendered":"Sickle Cell Program"},"content":{"rendered":"
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\n\t\t\"Virginia\n\t<\/div>\n\n<\/div><\/div><\/div>
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Sickle cell disease (SCD) is a term used to describe a group of inherited blood disorders that affects the shape and function of red blood cells.\u00a0 SCD causes red blood cells to function abnormally, becoming rigid and curving into a sickle-like shape. The sickle shape makes it difficult for the cells to pass through tiny blood vessels, resulting in painful blockages that prevent vital oxygen and nutrients in the blood from reaching organs and tissues. These blockages can result in tissue damage, severe recurrent pain, strokes, organ damage and other serious medical complications.<\/p>\n<\/div>\n<\/div><\/div><\/div><\/div>

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The Virginia Department of Health has started collecting patient information for the Sickle Cell Registry. This registry was created in response to a law passed in July 2024.<\/p>\n

Data is being collected in two phases:<\/p>\n

Phase 1: VDH-partnered Pediatric and Adult Comprehensive Sickle Cell Centers are currently entering patient information into the registry.<\/p>\n

Phase 2 (starting in August 2026): Hospitals, clinics, laboratories, and physicians across Virginia will begin entering information into the registry.<\/p>\n

VDH encourages your participation. The registry will help VDH better understand the needs of people living with SCD in Virginia. The data will help VDH and healthcare providers improve care and health outcomes. All patient data will be kept confidential and protected by law.<\/p>\n

SCD primarily affects those of African descent, but also is found in people who trace their ancestry to South and Central America, the Middle East, India, Italy, Greece and Turkey.<\/p>\n

There is no universal cure for SCD, but new treatments and preventive therapies have improved the life expectancy and quality of life for people with the disorder.<\/p>\n

The Virginia Department of Health funds three initiatives related to SCD, sickle cell trait (SCT), and other hemoglobinopathies: Virginia Sickle Cell Awareness Program<\/a>, the Pediatric Comprehensive Sickle Cell Clinic Network<\/a>, and the Adult Comprehensive Sickle Cell Clinic Network<\/a>.<\/p>\n

Virginia Sickle Cell\/Hemoglobinopathy Treatment Centers<\/a>\u00a0<\/strong><\/p>\n<\/div>\n<\/div><\/div>

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Statewide Sickle Cell Disease Registry Statement<\/h2>\n

\"Sickle<\/a>The Virginia Department of Health has started collecting patient information for the Sickle Cell Registry. This registry was created in response to a law passed in July 2024<\/a>.<\/p>\n

Data is being collected in two phases:<\/p>\n

Phase 1:<\/strong> VDH-partnered Pediatric and Adult Comprehensive Sickle Cell Centers are currently entering patient information into the registry.<\/p>\n

Phase 2 (starting in August 2026):<\/strong> Hospitals, clinics, laboratories, and physicians across Virginia will begin entering information into the registry.<\/p>\n

VDH encourages your participation. The registry will help VDH better understand the needs of people living with SCD in Virginia. The data will help VDH and healthcare providers improve care and health outcomes. All patient data will be kept confidential and protected by law.<\/p>\n

Patients can choose to opt-out of the registry here.<\/a><\/strong><\/p>\n

 <\/p>\n<\/div>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Sickle cell disease (SCD) is a term used to describe a group of inherited blood disorders that affects the shape and function of red blood cells.\u00a0 SCD causes red blood cells to function abnormally, becoming rigid and curving into a sickle-like shape. The sickle shape makes it difficult for the cells to pass through tiny […]<\/p>\n","protected":false},"author":657,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_lmt_disableupdate":"no","_lmt_disable":"","footnotes":""},"tags":[],"class_list":["post-2","page","type-page","status-publish","hentry"],"yoast_head":"\nSickle Cell Program<\/title>\n<meta name=\"description\" content=\"Sickle cell disease is a term used to describe a group of inherited blood disorders that affects the shape and function of red blood cells.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.vdh.virginia.gov\/sickle-cell-programs\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sickle Cell Program\" \/>\n<meta property=\"og:description\" content=\"Sickle cell disease is a term used to describe a group of inherited blood disorders that affects the shape and function of red blood cells.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.vdh.virginia.gov\/sickle-cell-programs\/\" \/>\n<meta property=\"og:site_name\" content=\"Sickle Cell Programs\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-02T18:11:16+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.vdh.virginia.gov\/content\/uploads\/sites\/64\/2024\/07\/Sickle-Cell-Registry-icon-300x180.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/\",\"url\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/\",\"name\":\"Sickle Cell Program\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/content\\\/uploads\\\/sites\\\/64\\\/2024\\\/07\\\/Sickle-Cell-Registry-icon-300x180.png\",\"datePublished\":\"2016-05-17T15:14:08+00:00\",\"dateModified\":\"2026-04-02T18:11:16+00:00\",\"description\":\"Sickle cell disease is a term used to describe a group of inherited blood disorders that affects the shape and function of red blood cells.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#primaryimage\",\"url\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/content\\\/uploads\\\/sites\\\/64\\\/2024\\\/07\\\/Sickle-Cell-Registry-icon-300x180.png\",\"contentUrl\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/content\\\/uploads\\\/sites\\\/64\\\/2024\\\/07\\\/Sickle-Cell-Registry-icon-300x180.png\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Sickle Cell Program\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/#website\",\"url\":\"https:\\\/\\\/www.vdh.virginia.gov\\\/sickle-cell-programs\\\/\",\"name\":\"Sickle Cell Programs\",\"description\":\"Virginia Department of Health - 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